|
I've been thinking about what I'd include in this post since just before my DIEP Flap surgery last month, because I knew there were elements of the journey I wanted to share that aren't rosy, brave, or empowering. For full context, the timeline of my breast cancer journey went a little like this:
I wish things could be tied up with a pretty little bow, because I've done the big things I was told to do and chose to do, but that's not reality. There's more ahead of me with continued medically induced menopause shots, hormone-blocker meds, and finding ways to transition into survivorship. Diagnosis Reflections Being diagnosed with cancer was something I knew would catch me due to my family history. Did I know it would catch me so young? No. I've described the experience of coming to terms with my cancer diagnosis as feeling submerged underwater to the point that light was barely visible above me. The voices of my care team, family, and friends were muffled and distant. I was alone in the dark. Because I am a person who pushes through, I eventually resurfaced, committed to approaching whatever came my way with new knowledge, optimism, and bravery. I was able to do this through personal drive and, undoubtedly, because of all the people around me who lifted me up. Every single person led with care and concern in both my personal and professional life, for which I'm very fortunate. Having and fighting breast cancer became my sole focus and purpose leading up to my bilateral mastectomy. I became single-minded about it all, but because I am very introspective, I think this was necessary for me to process what was happening. Bilateral Mastectomy Reflections When I started down the path to treatment, having a bilateral mastectomy was my nightmare. When it was time to decide my course of treatment after being presented with pathology findings, a bilateral mastectomy was the only option that felt best for me. With multiple known tumors in my left breast (unknown tumors found post-surgery) and dense tissue in my right (unknown pre-/borderline cancerous findings post-surgery), I wanted to eliminate the worry of breast cancer coming back. I didn't want to continue breast screenings, knowing I'd always have three tests at minimum - standard mammogram, 3D mammogram + breast ultrasound, and/or an MRI. And lastly, I wanted to avoid radiation or chemotherapy if I could. My physical therapist used the word "amputation," which was the first time I had heard that term used in relation to mastectomies. That's exactly what it is. An amputation of a body part that is traditionally looked at as a rite of passage into womanhood and a primary feature of feeling feminine. I did mourn this loss before and after surgery. For me, my breasts are something that make me feel beautiful and confident. Having them taken away against my will broke my heart a bit. To help capture my body before jumping into cancer treatment, my husband took some beautiful pictures of me in my most complete and natural state. I shared one below. The surgery itself was a breeze; I was surrounded by loved ones, and I recovered just fine. I had tissue expanders put into place in preparation for a future reconstruction surgery, which took some time to get used to. To help create a visual for the girlies reading this, my breasts looked normal and lifted with clothes on, but if you poked the right spot it would feel like an empty plastic bottle rebounding from being pushed on. My breast shape and size fluctuated slightly based on different factors (external/internal temps, weight, etc.), and there were up to nine inch horizontal scars across the center of each one. My nipples were not spared, so they were completely gone. By the end of our time together, I had grown used to them, their foreign feeling on my body, and all. Menopause Reflections Having menopause medically induced was not on my BINGO card for 2025. After discussion with my Medical Oncologist, we determined that prompting menopause alongside taking a daily hormone-blocker pill would be the best course of action for me. Prompting menopause would lessen serious side effects from the medication. The hormone-blocker would help reduce the risk of cancer recurrence. I get a shot monthly to move menopause along. So far, I've had these common symptoms:
The pill I take is an estrogen blocker called Letrozole. I have had no negative side effects as far as I can tell. If I have, they are items that overlap with my menopause symptoms. Once I'm more recovered from surgery and further into my menopause journey, I plan to get hormone testing done so I can get them balanced out. I am deep into research about what I can do now to help my future self. Our bodies are incredible things, and if I could share one finding now, it's that gut health is SO IMPORTANT! Reconstruction Reflections Reconstruction was absolutely the hardest part for me, physically and mentally. The alternative to reconstruction is going "flat." I did consider that option to avoid another surgery, but to feel most like myself after this chapter closes, I thought having breasts would be important for me. I chose Deep Inferior Epigastric Perforator (DIEP) Flap breast reconstruction surgery that used my stomach tissue instead of implants. I wanted the most natural outcome. Implants have the potential to leak; regular scans to prevent or catch leaks are required, and they need to be replaced every 10-15 years. I chose the option that is more "intense" up front for a longer-term, lower maintenance outcome. Even though I knew the general process I was going into for surgery, I think I was more nervous this time. Most likely because going under anesthesia for a 14-hour major surgery is pretty intense! My care in the hospital was superb, but things got hard after I got home. The surgery is no joke; I talk in more depth about the recovery complexities here. Physically, to be blunt, I feel like Frankenstein. Focusing on my body's flaws is luckily something I don't normally ruminate on, so feeling like I do now is foreign. I have up to 9-inch scars running horizontally on each breast with a circle in the middle to represent my nipples, which were not spared during my mastectomy. These circles are attached to skin and tissue from my abdomen. They're important to visually confirm that blood is flowing between my original breast tissue and the added abdominal tissue. Additionally, I have an up to 24-inch scar at the bottom of my abdomen and a reconstructed belly button. I am pushed over the edge when I also include thoughts about the bruising, swelling, and new (undesired) angles to my body. Mentally, I'm rebounding. The day I was able to get two of my four drains out, I didn't think I could cope. I spent the morning at the cancer center getting poked and prodded - labs, consultations, a 30-minute infusion, a shot. When it came time for the shot (which they had to do in my THIGH) I was certain I was going to throw a child-like fit. I smothered my face with a pillow until it was over. We then rushed to Iowa City for drain removal. I flat out told the nurse that I felt extremely fragile and unprepared for the removal. She was so kind and let Joel hold my hand and coach me through. The second picture below captures me just before that happened, trying my best to dig as deep as I could to find an ounce of bravery and strength. There was none to be found. I've never been unable to pull my shit together and adult through my appointments. This was truly the first time I felt helpless and that my body couldn't take any more. To compound the feelings of weariness, I have gone through several phases of, "Was this decision silly and vain?" Having a mastectomy was a no-brainer surgery - I was getting cancer out of my body to save my life. Having reconstruction was different because I felt that I was asking for support from others and my job so that I could essentially get a tummy tuck and new boobs. But here's the thing. Would I have chosen to do it if I hadn't had cancer? Absolutely not. I had to reframe my thoughts. Reconstruction is the last big piece of my cancer chapter before it can be finished. Reconstruction is cancer-related. Reconstruction is OK. Reconstruction is not silly nor vain. That's enough emotion dumping for today! If you're interested in reading more in-depth details about each step, you can click here.
And thanks for listening <3
1 Comment
I did it! On February 24, I had a successful Deep Inferior Epigastric Perforator (DIEP) Flap breast reconstruction surgery. I was in the gifted hands of Dr. Allison Lorenzen at University of Iowa Health Care, the same Plastic Surgeon I had for my bi-lateral mastectomy. It was a 14-hour surgery, including post-op recovery. I was in the hospital for three nights. Hourly monitoring has to be done following DIEP Flap surgery to ensure the tissue transferred from my tummy to my breasts was getting blood supply. They used a fun little doppler do-dad with a simple metal probe that allowed them to listen for the blood pumping. My inpatient care team was absolutely incredible and, by the time we were set to go home, Joel and I both felt confident about managing my post-op needs. I had four drains that needed to be "stripped" and measured twice per day, incision dressings that needed to be preserved, and bruising to monitor. Joel was with me the whole time, and I'm so very lucky for that. My parents, sister, and best friend also paid me a visit. When I had my mastectomy, the TV heavens blessed me with a Harry Potter marathon. The same happened this time around! Recovery has been rough. I have fortunately had no complications but, with my abdomen and breasts in pain, my mobility is still very limited. This surgery requires you to sit and walk with a deep bend at the hips to not pull on the abdomen incision, so I initially looked like a hunchback while walking! I'm standing more straight every day with less pain, but my chest is still pretty sensitive and cramps easily. Much more stillness and rest are required this time around. There are a few items I did not have on hand from my mastectomy that have been lifesavers during recovery: Abdominal Binder Post Surgery Belly Wrap Before discharge, the hospital fits you with an abdominal compression wrap. It is very basic and cut to size right in front of you based on the length of your abdomen. This worked well at first up until all four of my drains were removed because it was easy to use, flexible, and customizable if it was too tall or irritating my drains. For example, we cut a notch out of the wrap at one point so it wouldn't push up on one of my breast drains. I chose to get a more structured wrap for better support. Walking hunched over put a lot of strain on my back. It was extremely painful to the point I almost had to drop to the floor where I was standing. The wrap I got makes me feel safe, secure, supported, and reinforces my back. I believe it has helped me stand up straight more quickly than I would have with the hospital wrap. Folding Walker with Wheels Because of the back pain I had, a walker provided me enough relief to get in a few steps around the house and to/from the bathroom. Fortunately, a family member had one that I could borrow. If that wasn't the case, I would have looked into renting one vs. buying one. Bathroom Bench Bath Chair I was able to shower before leaving the hospital. That gave me the confidence to shower at home. I started on the edge of the tub splashing water onto myself. When I got this chair, it was a game changer. It makes showering easier and actually enjoyable. Again, fortunately, a family member had one that I could borrow. If that wasn't the case, I would have looked into renting one vs. buying one. I share more post-op favorites in my On the Mend post that I also used for DIEP Flap surgery recovery. What's Next?
I'm feeling a lot of things right now. Preparing for and going through reconstruction pushed me to my mental and physical limits. My chest is too cramped to write about that today, but I look forward to diving a little deeper into that soon. Thanks, as always, for the continued love and care. |
Archives
April 2026
Categories
All
|






RSS Feed